Our daughter Alisha was a beautiful and very happy little girl who made the best of her short time here. She sadly passed away aged only 6 months and 22 days, on the 1st October 2001 as a result of severe Spinal Muscular Atrophy (SMA).
We're raising money for the Jennifer Trust for Spinal Muscular Atrophy (JTSMA) who supported us in 2001 when we were faced with the loss Alisha. They helped us care for her and make the best of her short but very happy life. We’d like to help them in return so they can help other families as well as funding research into the condition.
We've since been very lucky to have Emma and Freya come along, who are both free from SMA. However, the luck of the genetic dice still affect many more families each year.
Every penny raised is donated directly to the Jennifer Trust for Spinal Muscular Atrophy. There are no administration charges. There are no fees. Even our web site is provided for free.
Full information about SMA is available from the information section of the Jennifer Trust for SMA website.
The Jennifer Trust for SMA is a charity which receives no government funding. Their motto is "Help for Today, Hope For Tomorrow". The JTSMA provide:
The JTSMA supported us when we needed them and we know first hand what a difference that kind of support makes. We've dedicated this web site and our fundraising efforts to support them, in memory of Alisha.
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